I am Sofiia, starting university next year to study biomedical science and in love with all things musicals, animals, biology, STEM, science, disability awareness, neurodiversity inclusion and more.
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Thank you so much for being proactive! It's true partial archives of some CDC datasets have been done, but the issue is is it's usually dynamic, in the sense that guidelines get republished each week (or day for outbreaks) and get updated continually. Furthermore, IA is working on archiving datasets, but downloading or using them only brings the static dataset without necessarily capturing the actual sitemap schema for navigation. Plus IA and EOT are great but are begging people to help out to decentralised our dependandance and provide alternatives if they get targeted.
At the very least, the hope is the most critical day to day functioning information can be reported and provided.
For example, HIV prescribing guidelines for clinicians and NGOs valid since last week have been put onto the doc, and vaccine information sheets valid from 28 Jan 2025 also put onto the doc if anyone needs them.
But thank you for looking into it 💕
Thanks for the question! Should have provided context. With new executive orders, entire databases are being deleted of open sourc public academic data. Efforts to retain access are kind of disparate and keeping track is hard, whilst datasets are too big for lone people to download and archive or host.
For example, here's a short excerpt of just some of the deletions since yesterday (started collating to keep track in the masterdoc, hoping to make a website/distribution etc):
PAPERS AND TOPICS DELETED or UNAVAILABLE: (as of 2/2/25) AND ALTERNATIVE SOURCES (IF AVAILABLE)
Broad topics:
TO SORT: Deletions and removals
There are some anonymous whistle lowers but nothing verified so im going under the assumption whether deleted or removed they are both removing short term access and we need an alternative central point for critical information.
I sincerely hope it's just offline but honestly the order was to remove it, but nothing in terms of specifics, and deleting it seems like a logical next step unfortunately in the way it's currently going.
I am crossing my fingers the orders are reversed and they are brought back, but without dynamic updates and a central resource point, global health and public data is in jeopardy in my opinion.
They've also closed freedom of information request forms to ask for the data or papers. So can't access it even in case by case requests.