Bio

Participation
2

I am Sofiia, starting university next year to study biomedical science and in love with all things musicals, animals, biology, STEM, science, disability awareness, neurodiversity inclusion and more.

linktr.ee/floraandfi

How others can help me

Wet and dry lab experience

Articles/book/podcast recommendations

Bioinformatics help with learning

Coauthoring papers?

How I can help others

Coauthoring papers

Researching for topics you need

Wet and dry lab interning

Comments
19

There are some anonymous whistle lowers but nothing verified so im going under the assumption whether deleted or removed they are both removing short term access and we need an alternative central point for critical information.

 

I sincerely hope it's just offline but honestly the order was to remove it, but nothing in terms of specifics, and deleting it seems like a logical next step unfortunately in the way it's currently going.

 

I am crossing my fingers the orders are reversed and they are brought back, but without dynamic updates and a central resource point, global health and public data is in jeopardy in my opinion. 

 

They've also closed freedom of information request forms to ask for the data or papers. So can't access it even in case by case requests.

Thank you so much for being proactive! It's true partial archives of some CDC datasets have been done, but the issue is is it's usually dynamic, in the sense that guidelines get republished each week (or day for outbreaks) and get updated continually. Furthermore, IA is working on archiving datasets, but downloading or using them only brings the static dataset without necessarily capturing the actual sitemap schema for navigation. Plus IA and EOT are great but are begging people to help out to decentralised our dependandance and provide alternatives if they get targeted. 

At the very least, the hope is the most critical day to day functioning information can be reported and provided.

For example, HIV prescribing guidelines for clinicians and NGOs valid since last week have been put onto the doc, and vaccine information sheets valid from 28 Jan 2025 also put onto the doc if anyone needs them.

 

But thank you for looking into it 💕

Thanks for the question! Should have provided context. With new executive orders, entire databases are being deleted of open sourc public academic data. Efforts to retain access are kind of disparate and keeping track is hard, whilst datasets are too big for lone people to download and archive or host.

For example, here's a short excerpt of just some of the deletions since yesterday (started collating to keep track in the masterdoc, hoping to make a website/distribution etc):

 


PAPERS AND TOPICS DELETED or UNAVAILABLE: (as of 2/2/25) AND ALTERNATIVE SOURCES (IF AVAILABLE)

 

Broad topics:

 

 

TO SORT: Deletions and removals

  • INCLUSIVE PRACTICES FOR HELPING STUDENTS THRIVE
  • YOUTH RISK BEHAVIOUR SURVEILLANCE SYSTEM
  • PREVENTING CHRONIC DISEASE | SEXUAL RISK FACTORS
  • SEXUAL HEALTH RISK ADVISORY CONCERNS
  •  
  • Also down was AtlasPlus, an interactive tool that lets users analyze CDC data on HIV, STDs, TB and viral hepatitis, and the CDC’s Social Vulnerability Index, data that helps researchers and public policy leaders identify communities that are vulnerable to the effects of disasters and public health emergencies.
  • A page about food safety during pregnancy called “Safer Food Choices for Pregnant People” was also removed.
  • CDC with surveillance data on HIV, viral hepatitis, STDs and TB. Also gone missing: a page with basic information about HIV testing. The CDC's Social Vulnerability Index, a tool that assesses community resilience in the event of natural disaster was also taken down.
  • For the first time in 60 years, MMWR weekly morbidity and mortality report isn’t published
  • Vaccine info sheets
  • As of Friday afternoon, several CDC pages related to HIV were down, including the CDC’s HIV index page, testing page, datasets, national surveillance reports and causes pages.
  • Many of the CDC’s sites related to LGBTQ youth were also removed, including pages that mentioned LGBT children’s risk of suicide, those focused on creating safe schools for LGBTQ youth and a page focused on health disparities among LGBTQ youth.
  • The site for the Youth Risk Behavior Surveillance System — a long-running survey that tracks health behaviors among high school students in the United States — said “The page you’re looking for was not found.”
  • Several webpages from Centers for Disease Control and Prevention with references to LGBTQ+ health were no longer available. A page from the HHS Office for Civil Rights outlining the rights of LGBTQ+ people in health care settings was also gone as of Friday. The website of the National Institutes of Health's Office for Sexual & Gender Minority Research Office disappeared.

Thank you so much for this! Amazing to see some application-based ways to make an impact with biology/health!

Thank you so much for both these amazing suggestions!!!

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