Is anyone familiar with H.R. 485? It has been introduced in the House, but it is not yet law.
According to the CRS "This bill prohibits all federal health care programs, including the Federal Employees Health Benefits Program, and federally funded state health care programs (e.g., Medicaid) from using prices that are based on quality-adjusted life years (i.e., measures that discount the value of a life based on disability) to determine relevant thresholds for coverage, reimbursements, or incentive programs".
I think the motivation might be to prevent discrimination against people with disabilities, but it seems to me like it goes too far.
It seems to me it would prevent the use of QALYs for making decisions such as is a particular cure for blindness worthwhile, and how might it compare to treatments for other diseases and conditions.
Is anyone familiar with this bill and able to shed more light on it?
Interesting! Do you think that is a common view? And do you think that federal healthcare policy should be made by somehow tapping into commonsense moral intuitions? Or should a winning, even if unpopular, argument determine policy options?
Edit: perhaps we can value QALYs on the principle that we’re unlikely to be able to accurately track all contributors to total ETHU in practice, but having people maintain physical health is probably an important contributor to it in practice. Physical health has positive externalities that go beyond subjective well-being and therefore we should value it in setting healthcare policy.